Hello you! It feels like its been ages. 

Mango recently got a new chair. It looks like someone cut a piece of their corner wall out and added cushions around it, to make it look 'professional'. It sits on the floor, a wedge between his legs to keep his legs straight and to keep him from thrusting/ arching and strap that hold up his upper half. i feel bad putting him in because it looks like I'd tied him so he cant move. Which in reality I actually have done just that, but not for the reason I feel but for the reason to hold him up so he can play with toys. Because seriously, lets face it. Hypotonia is the devil. I think it is anyways. Mango has also got his own special table that wraps around him just so neatly. 

On a different note. If anyone reads this (which I dont think anybody reads this except me). Mango has finally seen a neurologist for his so called 'seizures/infantile spasms'. At first we decided to leave it and just wait it out since they haven't been occurring very regularly.  Then I get a phone call from our neurologist and she said that she spoke to her colleagues and they all think its seizures and to start him on medication. We need to go through blood work first to make sure its all ok. She prescribed us Epilim. Anybody? Anybody ever use this before? Experiences please? Im not asking. I'm begging. 

I have met many parents with children's who have been diagnosed with seizures but  the medication they use are much stronger like steroids and stuff. Oh My GOD. Don't get my started on the stories they have told me about how all the strong stuff effected their kids so bad. It was scary. 

All I see online are medical websites. I don't want a medical website. I want parents experiences because after all. Parents know best because they see EVERYTHING. And doctors? I don't know. I trust them to a certain extent but come on now, most doctors go off by just guessing their way through until something works. They tell you all tiny weeny side effects that are 'oh not that bad' and they make the reasons to use the medication all fluffy and beautiful. 

So please, anyone out there. Parents, people, someone.... anyone?