*RANT ALERT*
Parents take so much for granted, the little things their children can do. I mean, I try and move earth beneath my feet so my son can take that first look at me and follow me. I totally understand that people mean well when they say 'he did it when he was ready' but somehow it still makes my blood boil. It makes me want to scream out that I have invested 24 hours and 7 days into trying to get him to look at me. I didn't spend 10 minutes of play time and suddenly he could look at me and follow me with his eyes. It wasn't that easy.
Months, weeks, days - who knew how long I sat on our lounge floor talking, singing, playing him all day and night till he went to bed trying to get me to look at me and follow my face as I moved my head side to side. I bought so many toys to try and get him interested. I tried so hard to get him to LOOK at me. To LOOK at ME!
My sister couldn't understand how I go to OT just so Mango can learn to stretch his thumb out and learn to grab things. One month at OT and I can see improvement, He actually grabbed a toy today with his whole hand. I don't care if it was by accident or he knew what he was doing but that he opened all five fingers to grab that toy is what I was so happy about. Yes, it was only once but it was enough for me to do a happy dance and thank Allah for helping him do so.
Who would have thought that opening all five fingers was so tough?...
Most people have no idea how every single thing is difficult to learn. We had to teach Emily to suck and to swallow. Normally once I explained that to people they left me alone with their questions and comments on her ability to learn. Teaching Emily to swallow and keep drinks and eventually food in took forever. We did a lot of laundry as vomiting was her most recurring activity! Teaching Emily to hold was like this huge milestone that was so far away. At some point, I didn't thing she would ever learn that.
ReplyDeleteEvery success in our house is a reason to celebrate and I am glad to know it is on your house too! Celebrate all the small success, they are worth it!
What can I say Pascale. You have really read my mind in and out. Doctors remind me over and over again how my little Mango will always be UNable in every single aspect in life. Yet, he has learned to track and open his thumbs. Massive milestones from where we first began.. thinking he was half blind ofcourse...
Deletethanks again for sharing your thoughts. It make me feel like were not alone even though we know we aren't... something different about seeing it rather than just believing it. I hope who ever comes to this site will feel the same who are in our shoes no matter where in their journey they are at.
Mama Bear